Batten Disease Support & Research Association - Midwest Chapter

Meet some of the Midwest Chapter members ...

Family and Friends coming together to share, care, and work towards a common goal.  

Chapter Officers.....

    President   -   Barb McDonough  - Orland Park, IL   
    Vice-President   -  Corrina Dahl - Peoria, IL 
    Treasurer    -    Darlene Royalty  - Ursa, IL 
    Secretary   -    Linda Smith - Valparaiso,  IN  

 Meet our Special Kids ...

Brittni Blankenship Born 9-16-90 Juvenile NCL Bartlett, IL

Rachael Lee Bonnell   Born 4/4/80 Passed 6/25/96   Juvenile NCL   Rochelle, IL

Abby Bortz Born 10/3/86 Juvenile NCL Janesville, WI

Mary Alice Bortz Born 7/25/84  passed 12/2/02     Juvenile NCL   Janesville, WI

	Christopher Chappell Born 12/13/96 Juvenile NCL Palatine, IL
	Elizabeth Chappell Born 6/21/98 Juvenile NCL Palatine, IL
	James Chappell Born 10/20/01 Juvenile NCL Palatine, IL
	Dareien Brooke Clark   Born 3/30/93  passed 7/10/03   Late Infantile NCL   Marseilles, Illinois    cyndi1@ameritech.net

	Rebecca (Becca) Nicole Collins Born 6/12/99 Infantile NCL Mokena, Illinois DawnC1623@aol.com http://www.benefitforbecca.org/
	Clifford Ray Dahl Born April 8, 1997 Juvenile NCL Peoria, IL
	Joel DeBord Born 5/23/87 Juvenile NCL Burlington, WI website- joeldfamily.homestead.com parent email-mdebord@wi.rr.com

Jon Richard Godfrey  Born  9/9/95 Passed 1/17/01    Infantile NCL  Elgin, Illinois  jr1cj2@mindspring.com

Jamie Marie Jersha   Born 9/3/87 Passed 12/8/93   Late Infantile NCL   Bartlett, IL

Jamie Killion Born 5/1/86 Passed 6/20/02     Late Infantile NCL Rockford, IL vickikillion@aol.com

Michael Lowery  Born  12/25/94  Juvenile NCL  Chicago, IL

Christopher McDonough  Born  12/7/85  Juvenile NCL Orland Park, Illinois  barblarmcd@aol.com

Jeffrey Montavon Born 8/2/88 Juvenile NCL Compton, IL

Sarah Osmoe   Born 11/20/1977  Passed 11/16/2006 Juvenile NCL   Hettick, IL

Amber, Sarah, and Sandy Royalty Amber born 3/15/81 Sandy & Sarah born 10/5/85 Juvenile NCL Ursa, IL

Charlie Scanlon Born 5/1/1981 Passed 12/26/2003 Juvenile NCL Dyer, IN

Linda Sivulka   Born 12/9/64   Juvenile NCL Caledonia, Wisconsin

Sibling Support ... 

Siblings have an opportunity to keep in touch since the annual conference, and plan for events for the upcoming year.   

  Thanks for visiting ...

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For more information about Batten Disease visit:  www.BDSRA.org

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