Batten Disease Support & Research Association - Midwest Chapter 


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       Sterling Silver & Swarovski Crystal  ~  Angelware by Barb McDonough                           Contact Barb McDonough to order:  BarbLarMcD@aol.com  

         

  Also available ITALIAN CHARMS AND ITALIAN CHARM WATCHES.  Contact Barb McDonough to order:  BarbLarMcD@aol.com

              

                                   BDSRA Charms $6 Each

                                       Birthstone Charms $5 donation  

 

                                                         
 

Watch links $15-25                 Watches with 2 charms $25 - $30

 

Raising Funds and Awareness ...

Also Available ~ 

Batten the Bear      and      Cookbooks

  

Contact: 

Darlene Royalty at   royalty@adams.net

for information about Batten the Bear. 

Contact: 

Barb McDonough at 

barblarmcd@aol.com

for information about cookbooks. 

 

Working together to raise awareness and funds for RESEARCH & SUPPORT  through various events:

  Bake Sales           Cook Book Sales      Walk-a-Thons          Raffles 

     Pancake Breakfasts         Golf Outings           Mini-Golf Outings  Bowl-a-Thons          

      Garage Sales       Dinner Dances        Spaghetti Dinners    Direct Donations        

      Rubber Bracelets       Magnetic Ribbons       Hand Made Crafts     Jewelry Items

Contact Barb McDonough at BarbLarMcD@aol.com for Italian Charms and Angel Earings/Necklaces.

                              Research is our only hope.   

2007 Events ...

 To be announced. 

Remembering Past Events ...

2006 ...

May 21, 2006  ~  Chapter meeting at The Children's Farm  - 7 Families attended 

July 20 -23, 2006  ~  Check out our Midwest Chapter table at the National Family Conference! 

2005 ...

NOVEMBER 5, 2005  ~    

For more information on Batten Disease go to http://www.bdsra.org/.

 October 15, 2005

You can help make a vital difference in a little girl’s life. This beautiful little girl is Becca and she is very sick. She has been diagnosed with Batten Disease. It is a rare genetic disorder that attacks the eyes, brain and central nervous system. Prior to Becca’s 3rd birthday, she was a healthy, happy, and normal child. As her symptoms began to take hold we watched our bright and shining Becca lose the majority of her speech, her vision and her ability to understand others. Becca is now almost completely blind and doctors have found that she is having around 100 seizures a day. Doctor’s have begun aggressively treating Becca with new drug therapies. These new drug therapies are lending some hope to Becca’s parents Michael and Dawn Collins, along with her 8 year old sister Natalie and 1 year old brother Michael. These drugs along with physical therapy and regular visits with specialists, including some in New York, add up to an incredible financial burden on her and her family.

If you are unable to attend our event, a medical benefit fund has been established in Becca’s name at First Midwest Bank. If you would like to make a private contribution, please make checks payable to: Benefit for Becca, First Midwest Bank, ATTN: Teller Department, 19648 South LaGrange Road, Mokena, IL. 60448 Or visit us online and make a donation at our web site

WWW.BENEFITFORBECCA.ORG

 

Supporting each other, as we work  together to find a cure.     

                                                                                                   

How you can help ...

For more information about Batten Disease visit:  www.BDSRA.org

Or email us at:  BarbLarMcD@aol.com  

 

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